this morning we had to wake up extra early to get to the hospital for an appointment with the orthopedic doctor. we saw him around 6 months ago or so and at that time he didn't seem to think anything needed to be done. kaiya's PT suggested getting baseline xrays done of her spine so that if in the future we thought her posture was becoming an issue we would know where she started from. well, the ortho didn't see a big problem with her spine but thought her hips were tight so he had those xrayed and wrote a spine xray on the order also but the tech didn't see it and when i mentioned it she said it wasn't there....oh bother :( so when i went back to him he said it wasn't a big deal and we would handle it when we see him in 4 - 6 months... we had PT right after all of this running around and the PT was shocked to hear that he didn't get the spinal xrays because that was the whole purpose of the visit. she specifically talked to him a couple of weeks ago about this issue and that's how the whole appointment came about...we will probably be back in next week getting some spinal xrays :)
on a better note, akaiya did really well during her PT session. we found out that next week will be her last session at the hospital - i'm still very sad that we won't be going back every week :( hopefully kaiya will miss them too and decide to progress a litte further so we can start back up. in the mean time i'm going to start trying to figure out how i can get something built that would simulate a light gait...
3 comments:
Do I get to be the first to comment? I hope so! I love her litte outfit and the picture is so precious. I am glad I will be able to follow easliy now to see what we may be going through in a few years. You said she can't go back to the hosp. and hoping that she will progress. Are they stopping her due to lack of progress? I am just curious.
they are actually decreasing to a monitoring standpoint - she will be seen once every 3 months - because she progresses very slowly. if she starts to digress or if she makes substantial gains they may resume the weekly sessions.
Hi kelly,
Got to know about your Akaiya through Cathy. So glad you've discovered blogging! Like me, I've been wanting to start for the longest time and only did few months ago. It's such a great way to keep in touch. Look forward to reading about the days of Akaiya.
would like you to meet Vera, my 6 month old with Trisomy 18.
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