home home home

we were finally able to go home on monday. the docs released us early in the morning, but we had to wait until 7pm to leave b/c home health care had to be set up. it was such torture knowing we were medically okay and ready to go, and all we were waiting for was a pump to be delivered. a little part of me was wondering why the hospital waited until the day we were being released to set this up. they knew we were going to need a pump, why not get things going before release. i was especially cranky when i found out that the social worker hadn't even ordered anything until 5pm, and that's when she learned about the 8 hour turn around...yikes. luckily my insurance company acted faster than they thought, and we got the pump at 6:30. it's a kangaroo joey, and so far i like it. it's small and pretty easy to use. kaiya has been such a trouper. she's more awake, more alert, just more "there" than she has been in a LONG time. she thinks everything is hilarious, and just sits around with a sly little smile on her face. she's actually making me regret not getting the g-tube sooner. has she been a little out of it b/c she was always a bit undernourished or dehydrated? she was gaining weight...but maybe she just wasn't getting the right kind of nutrients? i don't know, and will probably drive myself crazy thinking about it. we are using the tube for supplemental feeds. she isn't taking too much by mouth just yet, but she's working her way back up. i actually did my first gravity feed today while she was sleeping. how convenient is that? she gets to rest, and i can still give her the calories she needs.