Sunday, June 20, 2010
so far so good???
feeds were started last night at 6:30 pm. we started with pedialyte and once we realized she was tolerating that moved to pediasure at 12:30 am. she has been on continuous feeds of 45 cc's per hour since then and so far so good. she seemed to be in pain last night at around 2 am, but i think that it's her iv bugging her not her belly so much. she had been laying on the side where the iv is and she started crying when she turned over. it looks kind of red and puffy to me, but supposedly it's still flushing so it's good. i just want it out b/c iv's in the neck scare me! we gave her tylenol and she went back to sleep pretty quickly. a surgical resident visited us this morning and said that everything looks good. she didn't change the dressing, which i thought was odd...but she said that someone (a nurse i'm assuming?) would do that later. she said that as far as she is concerned, once we get to goal feeds we can go home. the g-tube is for supplemental use only so does that mean we're there? her pediatrician isn't going to let us go till tomorrow anyway so i guess i'll just have to give up on my dreams of sleeping in my own bed till later. kaiya seems to like the bed here though. it might be time for mama to give in and get her a new bed. one that she actually fits in =) my next job is to start figuring out where the heck i get all the supplies for this new adventure we're on. i don't know if the hospital gives us a pump or if i should be making calls to my insurance company about what to use...or if i even need one? some people use gravity right? i need one of these nurses or docs to come in and let me know what the heck to do!
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5 comments:
Yay for progress! I hope you guys get to come home tomorrow! You'll figure this all out...just another adventure for you guys. Yes, some people use gravity (I have actually clipped the feeding bag to the chalkboard when our IV pole was out of commission!). Other people bolus feed using a syringe to push it in. So, a pump isn't totally necessary, but may be more convenient for you at home! Akaiya is so lucky to ahve such a great mom! Hang in there!
Pump is optional. It depends on how much you use it. You said just supplemental so you may not need one. We used ours daily and now continuous for sometime. Our home health agency helped us get ours. Just do research on which one you want first. Don't let them tell you. The one they were going to give Annabel was clunky. This was in small and so portable. Get home soon sweet girl.
thanks amanda! good to know that there is an iv pole at school. didn't even think about where to hang all this junk :)
cathy, what type of pump do you guys use? i checked the internet and the kangaroo joey looks small and easy to use. the interalite looked pretty good as well. all the other ones looked like they weighed a ton.
Kelly, ours is a Zevex Enteralite Infinity. It may be the smallest on market unless something newer has come out.
How's it going? Is Akaiya home yet? Thinking of you guys!
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