Wednesday, December 17, 2008

more work needed

kaiya had her first follow-up visit with her PT at the hospital. it was wonderful to be able to see everyone again - kaiya was really excited to see her old friends! she was evaluated and the PT told us what i already knew. kaiya's back is looking worse...so hopefully if we change a few things that we are doing kaiya will improve, or at least not get worse...we still have to look into changing her chair, or getting a new one. this chair that she has is falling apart daily. it's also not the best seating situation for kaiya.

on a better note - miss thing's cold went away pretty fast. she still coughs in the morning, but she sounds a lot better during the day. she has a new favorite thing to do - she shakes her head back and forth like she's saying no. she does it in between rocking back and forth. she laughs her little head off the whole time she does it. she is also licking the backs of her hands and her arms. it leaves the skin all red and chapped - not pretty. i've been trying to discourage the behavior, and find a cream that will cure all that chapped skin. this poor kid has dry skin anyway - add in the drooling and licking...it's not good at all.

2 comments:

Yin May said...

she's discovering things her own way. living life on her own terms. hope you get a good chair for her, although i'm not sure if she's the kind who sits obediently or like miss vera who kicks and cries!

Kelly said...

obedient is not a word i would ever use to describe kaiya! and i say that with a big smile on my face :)

she does not like to sit in her wheelchair AT ALL! and i don't know how much of that is b/c the chair is uncomfortable for her - or if it's b/c she does not like to be contained. she does think it's fun to rock and make the chair move...especially if she is on an uneven surface and mama hasn't set the brakes well. i'm almost glad kaiya will never get her license b/c this kid has a need for speed! lol :)