Saturday, June 27, 2009

it's getting closer

akaiya will be getting surgery on her eyes this thursday (as long as she remains healthy). we have been going back and forth on repairing her ptosis for about 4 years now...we wanted it, the doc didn't really think it was necessary...now he agrees that it needs to be fixed. i will write down what is in his letter to akaiya's pediatrician so i don't mess up any of the details of what is happening.

...Congenital ptosis; exotropia. Fortunately no occlusive amblyopia or other functional ocular deficits were observed in association with this. This degree of ptosis definitely impairs upper visual field use. Ptosis surgery (levator resection) and exotropia surgery (lateral rectus recession) is therefore scheduled for July 2...

obviously she will be under anesthesia, which makes mommy very nervous! surgery is only supposed to last 45 minutes and he said that she will be able to return to school on monday. if you have a chance please send some happy thoughts our way that day.

kaiya currently looks like she entered a boxing match - and lost. one of her top front teeth is still hanging on by a thread. it's actually sitting crooked in the center of her mouth. she was outside for about 5 minutes last night, but it was enough time for those evil mosquitos to get to her. she has pretty severe reactions to the bites. she got bit on her right temple so that is all swollen, and she also got bitten on the right side of her neck right under the ear so that has a big old swollen welt...poor kid :( she's pretty itchy so we're going the benedryl route to see if that helps.

6 comments:

Yin May said...

she looks like someone boxed her in the boxing ring! I know it's itchy but it's quite funny! gatingon

Unknown said...

Poor baby!! I wonder what the other boxer looks like?!? *wink* 2 questions for you...
1. How old was Akaiya when she started getting teeth?

2. What is ptosis? Akaiya's eyes look fine in her pictures. I have heard of it, but I just don't SEE what it is. An extra flap of skin?
I don't can you enlighten me?

Okay I lied, one more question...are you going to the SOFT conference?

I do hope Alyssa follows in Akaiya's footsteps by thriving as Akaiya has. Akaiya looks so so happy and fun-loving. I know it isn't all peaches and cream but it's neat seeing her beautiful smile. Ilove it when you mention how Alyssa reminds you of her..it gives me hope :-)Trish

Kelly said...

hello! yes we are going to the SOFT conference! we can't wait!!!

for the other questions:
akaiya started getting her teeth at around 1 year (a little bit after i think...i would have to check the pics to be sure.) it took forever for her teeth to come in, and the last ones appeared when she was around 3. which is why it was so surprising to me when she started losing them so early!

ptosis is basically the "correct" term for droopy eye. her right eyelid is droopy. it's a lot more noticeable when she is sleepy, but it is getting worse. we tried patching but it just didn't help her...well, actually, she tore the patches off and i didn't know a better way to do it without duct taping the kids eye! so, from what i understand, the doc will go in and put a stitch in one of the muscles to help hold the eyelid in place. kaiya is pretty much just getting an eyelift. she's so hollywood ;)

Yin May said...

I was wondering what ptosis was too. Would it affect her vision a lot if she did not have the surgery?

All the best...fingers crossed and best thoughts for the eyelift! hope all goes well.

Kelly said...

the drooping eyelid obscures her vision. and from what i was told it can actually change the shape of the eye which would have a negative impact on her vision. and the worst case scenario would be that b/c she isn't able to see out of that eye with the eyelid in the way, she would become dependent on the other eye, and could actually lose all vision in her right eye.

thanks for the good thoughts!

Cathy said...

Prayers for that surgery to go so well. Prayers also for the anesthsia. That is the not so fun part.
Wow, that is a reaction to those horrible bugs. I can only imagine how much she is itching.
Thanks for explaining the ptosis! Never heard of it. The closer the conference gets the more I am sad I won't be able to share in all the fun! Give her hugs and will be checking in often. Got my computer back.